ALS Advocacy
alsadvocacy
#ALSregistry meeting thread What we see so far. Still has not started. Starting 815 EDT Mehta agenda Nothing about better description of prevalence and incidence of ALS in the US.
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CDC materials to try to get ALS organizations to increase registry uptake. Take a look... https://www.cdc.gov/als/files/National-ALS-Registry-Webinar.pdf 1 They are treating them like naive volunteer organizations who need a lot of
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